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Campaign against cystic fibrosis

A supportive online initiative aims to have a purple bow on every Facebook profile picture on the 29th of June, as a way of supporting this illness.

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Campaña contra la fibrosis 5Cystic fibrosis is a hereditary genetic illness which mainly affects the lungs, and to a lesser extent the pancreas, stomach and intestine.

It is one of the most common genetic illnesses in the western world and it is estimated that one out of every 25 people of European descent, is a carrier of the gene that causes Cystic Fibrosis. In fact, it is one of the most common in the United Kingdom with more than 9,000 people in this country suffering from it.

At the moment, this genetic illness has no cure, however there are treatments that can improve symptoms and prolong the lifespan of a patient. But in severe cases, worsening of the illness can cause the need for a lung transplant.

Campaña contra la fibrosis 4Cystic fibrosis statistically affects one in five babies born every week. One of those children is the two year old daughter of Liz Hawkins, the promoter of a symbolic online initiative to raise awareness about the illness.

On the 29th of June, the mother asks users of the social network Facebook to change their profile picture to an image of a purple bow, the colour that symbolises this fight.

Liz, who describes the situation that she and her daughter are going through as “painful and frustrating”, only intends to raise awareness of cystic fibrosis through this symbolic act.

Consulta-Médica-Puerperio1The goal is to invest much more money in treatments, cures and possible solutions to this illness for which more than two million people in the United Kingdom carry the defective gene that causes it.

More than 1,800 support Liz’s initiative on the social network site, but the objective is, in her own words, “Let’s turn Facebook purple for one day and get it worldwide.”

Date: 29th June 2013. Learn more at the website.

 

 (Translated by: Rachel Sharp)

 

 

 

 

 

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